[whitesage]

Originally Posted by Glitch

So while I am the all knowing Glitch of Fortune . . .

I've been having a little issue lately and I am not sure what to do.

I have Marfan Syndrome. It's a not well known genetic disease that 1 in 5000 people have (although like 90% are not diagnosed).

Sometime in my teenage years I began experiencing this pains in my chest. I was originally told I had mitral valve prolapse and that the pains were just from my heart regurgitating a bit. On my last visit though (2 years ago) they told me that I actually didn't have that.

One time the pains were so intense I thought I was having a heart attack and my chest was making such a loud suction cup noise when I laid on my side that I couldn't sleep. I was panicked so we went in and they told me "i don't see anything wrong. The suction cup sound is just because you know your heart and your lungs are sticky."

I haven't had really any abnormal issues for awhile but all this week I keep getting this tiny stabbing pain around where my heart is (but also my lung!). It lasts for about 2 seconds and then goes away for a few hours. I am hesitant to go to the doctor because I don't want to just be told it's nothing again. (granted i really hope its nothing) I tried asking a marfan syndrome support group but they blow everything so out of proportion. . . "go go go never take chances!" But I'm like. . . every other time it's been nothing. Waste of a trip, waste of money. I haven't told my boyfriend about the pains because he has expressed to me in the past he doesn't want to end up with somebody whose crippled and has already said he has some concerns about my ability to manage my migraines in the future.

I will say the little pain is always in the exact same spot. Kind of like somebody is poking me with a needle. Right now though, while writing this, it's happened like 3 times.

SO I guess, do you think I should wait a bit and see if it stops? Should I just go even if it's going to expensive to see the doctor? Should I suck it up and tell Brady? I feel like I don't have anyone to talk to about it and that's largely why I am writing this.

Get it diagnosed if nothings comes out then it sounds like you are facing something which is called "cardiophobia" currently i am suffering from it but after meds this strange things doesn't come up often.